Health Update

The course of the last several months has been a mixture of fun and health ups and downs. Let’s cover the trying parts, shall we?

My health has been pretty stable for the past 2 years — no cancers and iron level has been stable with yearly intravenous iron therapy and supplements. The past year I have been rather quiet about an issue I have been experiencing internally. I have had a strange lump rollabout in my solar plexus region. The sensation started out feeling small and less troublesome. If I attempted to bend over, it would feel as if a marble rolled from my spine to the front of my chest. It was alarming, but did not hurt. After a few months, the sensations increased and the sternum pressure started. I went to my local hospital’s ER a few times for the fullness sensation I was experiencing in my chest. It felt like I couldn’t breathe, or my chest was craving in. Being safe, I listened to my body. I kept going into the ER and was diagnosed with different issues each time. Though I felt unsatisfied with each diagnosis, I went on living my life and hoped everything would work out itself.

Over the past year, my levels of uncomfortableness increased each day. Sleeping was now a lengthy process (I get about 3 hours of actual sleep per night lately — on a good night.) Laying down was like an elephant was upon my chest. My resting blood pressure would become menacingly low. Not to mention, eating was more of a chore than it had been. Eating binding foods such as breads, broccoli, and quinoa, for example, completely horrendous pressure afterward.

The past couple of months, I had a painful spot on my arm which did not appear to resemble Squamous Cell Carcinoma (SCC), just alarmingly painful. The simple gentleness of fabric brushing against the spot felt like razors. I made an appointment with my wonderful Dermatologist, to perform a biopsy and hopefully remove most of it in one sitting (it was positive for SCC). During the numbing process, I became lightheaded and my chest felt aggravated and heavy, but I could feel myself blacking out. My doctor immediately saw my distress, and helped bring the blood back to my cranium. I spoke with my doctor about the issues I had been experiencing the last year, and he urged me to see my last G.I. doctor, not the local doctors in my small town since they don’t have the specialty to equip my disorder.

After a pre-visit appointment with Gastroenterology, we formulated a plan best for figuring out what may be the issue. Tomorrow, I am going in for a scheduled Esophagram and on July 29, the university scheduled me for an Endoscopy procedure. There is no guarantee whether the Esophagram will answer any questions, but I am praying it does. The exhaustion — physically and mentally — from this has been leaving me on empty. What could it be? There only has been speculation from a few doctors’ and nurses’ that my esophageal strictures (a complication due to Epidermolysis Bullosa) could possibly be worsening and/or developed a hiatal hernia. Whatever the issue, I pray I continue to have faith, strength, and a calm heart.      

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